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Diagnosed at 29 I started this blog to document my journey with Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND) or Lou Gehrig’s disease. I don’t know how the disease will manifest itself. Whether I have 1 year or 10years+. But I hope that this blog will be some sort of legacy.… Read more

Anticipatory grief is a feeling of loss or grief that occurs before a death or loss happens. It can be experienced by the person who is dying, their loved ones and their family. Living with MND is continuous cycle of loss, grief and adapting to change. The body is in a permanent state of decline.… Read more

Another year has passed and I’m still here. It’s not incurable it’s just underfunded. It could affect you or someone you love at any time. 💙 Thank you so much to everyone who liked, commented and/or shared the video of my 5 year diagnosis anniversary. I’m blown away by the response & in 24hours it’s… Read more