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  • Jo’s Journey with MND

    16th Aug 2019 by

    I’m 29 and starting this blog to document my journey with Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND) or Lou Gehrig’s disease. I don’t know yet how the disease will manifest itself. Whether I have 1 year or 10years+. But I hope that this blog will be some sort of legacy.… Read more

  • Day 315 – 100 Days of Lockdown

    21st Jun 2020 by

    When I was diagnosed in August 2019 my walking was good. I wanted to start my bucket list but couldn’t find anyone who was in a position to drop everything and go on a cruise or holiday with me. Everyone had other commitments or limitations with lack of funds or annual leave. I knew I… Read more

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