I’m 29 and starting this blog to document my journey with Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND) or Lou Gehrig’s disease. I don’t know yet how the disease will manifest itself. Whether I have 1 year or 10years+. But I hope that this blog will be some sort of legacy.… Read more
When I was diagnosed in August 2019 my walking was good. I wanted to start my bucket list but couldn’t find anyone who was in a position to drop everything and go on a cruise or holiday with me. Everyone had other commitments or limitations with lack of funds or annual leave. I knew I… Read more
A hot water dispenser – I am now unable to safely lift or fill the kettle to make a cup of tea. With this dispenser, you push the button, place your cup underneath and voila! You can use a small cup or jug to fill up the water tank at the back. I went for… Read more
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