• Jo’s Journey with MND

    16th Aug 2019 by

    I’m 29 and starting this blog to document my journey with Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND) or Lou Gehrig’s disease. I don’t know yet how the disease will manifest itself. Whether I have 1 year or 10years+. But I hope that this blog will be some sort of legacy.… Read more

  • Day 481 – Acceptance

    5th Dec 2020 by

    I dream about getting a call to say that they got it wrong, what I have is curable and I can now start rehab and build my body back up. I’d be hitting the gym twice a week, then three times a week, then 4-5 times a week. Hot yoga every Friday. I cook all… Read more

  • Day 454 – Vulnerable and Helpless

    8th Nov 2020 by

    One of the many things I hate about MND is how vulnerable and helpless you become. In the early stages when my walking was good, I would fall over while taking Chino out before bed. I would try to go to work as normal but come the evening I would be crawling from the park… Read more

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