I’m 29 and starting this blog to document my journey with Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND) or Lou Gehrig’s disease. I don’t know yet how the disease will manifest itself. Whether I have 1 year or 10years+. But I hope that this blog will be some sort of legacy.… Read more
I dream about getting a call to say that they got it wrong, what I have is curable and I can now start rehab and build my body back up. I’d be hitting the gym twice a week, then three times a week, then 4-5 times a week. Hot yoga every Friday. I cook all… Read more
One of the many things I hate about MND is how vulnerable and helpless you become. In the early stages when my walking was good, I would fall over while taking Chino out before bed. I would try to go to work as normal but come the evening I would be crawling from the park… Read more
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