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Jo’s Journey with MND
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Day 1 – Diagnosis – August 12th 2019, My life is changed forever.
Day 2 – Family & Friends
Day 3 – The Bucket List
Day 4 – Research & Clinical Trials
Day 5 – PMA, Diet & Exercise
Day 6 – Gym
Day 7 – Support Groups
Day 8 – Scam Artists
Day 9 – Fasciculations
Day 12 – Socialising
Day 13 – Paleo Diet
Day 14 – Supplements
Day 15 – Listen to your body
Day 19 – Word getting out…
Day 20 – Relationships, marriage, children
Day 23 – Slips, Trips & Falls
Day 24 – Gadgets, Aids & Adaptations
Day 32 – Physiotherapy
Day 48 – Public Transport, Public Toilets & Still Game.
Day 58 – Fitbit Vs Apple Watch
Day 69 – MND is such a b*****d
Day 99 – Assisted Travel
Day 75 – Being Organised – the practical boring stuff
Day 118 – Alternative Therapies
Day 120 – First time flying with a disability
Day 169 – 365 days since my first symptom
Day 209 – Losing my independence
Day 225 – Coronavirus
Day 254 – Self isolating & lockdown
Day 266 – Grieving for my old life
Day 298 – Things I have bought which have made life easier
Day 315 – 100 Days of Lockdown
Day 343 – Progression and Changes
Day 367 – One Year On, I Miss…
Day 395 – Is this destiny?
Day 433 – A Lost Future
Day 454 – Vulnerable and Helpless
Day 481 – Acceptance
Day 545 – Who will… when I’m not here?
Day 635 – To RIG or not to RIG? Tough decisions
Day 732 – 2 year Diagnosis Anniversary
Day 757 – Hospital ordeal
Day 820 – I made it to 32!
Day 828 – Losing Alan
Day 895 – Quality of Life
Day 950 – Just ask ME!
Day 1020 – Birthday’s, Blood clots & Tears
Day 1101 – Near Death By Chicken
Day 1147 – Seen but not heard
Day 1222 – Updates & Losing Doddie
Day 1268 – Clinical Trials and Test Results
Day 1402 – Don’t let me die
Day 1532 – My First Hospice Experience
Day 1600 – Turning the Tide
Day 1686 – Don’t write me off
Day 1828 – FIVE YEAR DIAGNOSIS ANNIVERSARY
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Jo’s Journey with MND 